Monday, October 1, 2012

I think I'm Moving

This blog was created especially for Jared.  I found his life on our family blog was consuming the whole thing.  I have 3 other children with stories.

Lately I've struggled with that notion.  I've said here that Jared is so much more than the Autism diagnosis.  I've decided to continue with his stories on our family blog for a while.

Perhaps I will return to this blog.  I don't know.  In the meantime, ALL that Jared is will be recorded with his family's stories.


Monday, April 2, 2012

What Did World Autism Day Look Like

I kind of didn't let Jared in on it because then all he would talk about today would be autism.  When I say talk all day, I am not exaggerating.

So W.A.D. for me meant getting a call from a mom to let me know that Jared was on the receiving end of a bullying situation where her son and another boy intervened and ended it.  That led to emails to the school to find out what's going on because Jared NEVER shares these things with me.

I did manage to get out of him that he gets bullied on a regular basis, but what's the big deal, MOM??? Homo. Gay.  Just minor stuff like that.  He defends these boys too.  They are his friends.  I know Sean and I struggle to teach him that's not a friend, but his discernment in that field is pretty rotten.

So emails are sent.  I've been told there will be follow up tomorrow.  So here I wait and see.

Jared's a move on to the next thing kind of kid.  He doesn't dwell on negatives.  He's pretty cheerful and chatty.  That doesn't help in this case.

Sunday, April 1, 2012

Love

To a young man who constantly teaches our family that the worth of each soul is great. We love him for his perseverance. We love him for his forgiving and positive nature even when the world is cruel to him. We are grateful for the amazing strides he has achieved on his journey and the work he does to try to overcome the obstacles he continues to face. Thank you to all those who love him even when it's hard. Thank you to his brothers who shoulder the extra pressures and responsibilities that been placed in their path. Jared, we love you. You are a hero and someday the whole world will see that too.

Our Angels

Mormons love lots of church and our semi annual General Conference is no different.  A weekend, twice a year, of church.  Lots of good stuff.

I am posting one of my favorites.  I had a few, but this one related to my Jared and to all those babies who are born less than what the world deems perfect.

Our babies are not born this way as punishment.  I think they are valiant souls sent here to teach the rest of us. They are a mirror into our souls if we care to look.  They teach us patience.  They teach us love.  They teach us service. They teach us to rely on powers greater.  They teach us faith.

The worth of souls is  great in the sight of God........a few glitches in your physical make up does not devalue you.

http://www.lds.org/general-conference/watch/2012/04?lang=eng&vid=1541950017001&cid=6

Thursday, March 29, 2012

And a Child Shall Teach Them.....

I have been negligent in my blogging, but for now I will post this.  April 2 is Autism Awareness Day

http://www.youtube.com/watch?v=ejpWWP1HNGQ&feature=share

This a BBC presentation.  Let the children teach  you what it's like.

Thursday, March 1, 2012

Trusting in an Untrusting Manner

It's March already??!!!

I got FANTASTIC news in December right before Christmas.

FANTASTIC, as in I'm being completely sarcastic.

Jared came home on day and asked if the school had phoned home.  Love that.  Ummm.....NO.  Please tell me why they would call.  Wait.....do I want to know?  No.  Wait......Yes.  Hmmm......can I handle this right now?  Rats.  Tell me.

My baby had an altercation in gym class.  Dodgeball, no less.  He loves dodgeball.  That's not the issue, though I am sure it contributed.  Where was his assistant?  Oh yeah.  She's not with him in gym class anymore.  Hello?!!

So I contacted some fine teachers, and I do mean fine - they are good stuff.  Yes.  Jared lost assistance in gym class because she was needed with another student.  Jared had one really tough class but he's been doing better since and while class is easier for him with help, he's making do and doing well.

Great.  That's good news.  I'm okay with that.  It's our goal that Jared learns to function with minimal supervision.  I hate the bumps along the way, but sometimes we have to hit the bumps.

What I objected to was the fact that the school administration did not deem it necessary to notify me of the change.  Seriously.  None of my business apparently.

I stewed about it over Christmas break and then for a couple of weeks after that.  I was mad.  I wanted to be heard.  I am not, however, one to fly off the handle when it comes to my children.  I like to be deliberate with my thoughts laid out and my ducks in a row.

I sent an email outlining my concerns about not being notified of the changes.  I expressed my feeling that as a parent I was being snubbed and not a part of the decision making process in regards to the educational welfare of my son.

Long and short of the story....I got a phone call.  I got an explanation.  I asked some questions.  They gave me some answers - some I liked and some I didn't.  I expressed my feelings and reiterated my desire to see Jared be more independent, but I wanted notification of changes.  I shared my concerns.  They mostly kind of allayed those concerns......mostly kind of.

Middle school ain't what our elementary school was.  I can't even imagine how high school is going to kick me in the teeth as a parent.

I continue to seek updates on Jared from his teachers.  They are happy with his progress.  That administration.......I sleep with my eyes open where they are concerned.  It's too bad.  I'm such a great parent to collaborate with.

Just makes this journey that much more challenging.